Endometrial Cancer, wtf.

captivatedcaptivated
edited April 2012 in Health
I got a call from the OB saying that I had some abnormal results and needed to come in. I managed to get her on the phone and she told me she ran some tests and believes there's a chance I have uterine cancer...she didn't tell me she was running these tests..why? Said my pap came back abnormal with squamous endometrial cells, did a blood level check something called ca125 or something that was high and my u/s had "striping". That I have to come in and get a biopsy done or they could do it with the D&C. Does anyone have any experience with this? Could she be wrong?

Comments

  • littlenat86littlenat86
    I have no experience hun but I am praying they got it wrong xx
  • heyitsmeheyitsme
    They automatically do those tests when they do paps. most of the time abnormal tests turn out to be nothing. I hope everything is ok!
  • captivatedcaptivated
    @heyitsme, the PAP I understand, but the 125 bloodwork? She said she suspected it based on my med history and symptoms, but didn't mention it because of my age and instead ran the tests. She says the biopsy is just a "formality" now...making me nervous as hell.
  • heyitsmeheyitsme
    Oh hmmm. praying for you! when do you go in? I've been reading your posts but haven't commented but you have been in my prayers. you have been through so much :(
  • captivatedcaptivated
    I schedule it tomorrow @heyitsme, not sure if I'm doing the D&C or not...I started to cramp more today and am spotting, so maybe it's finally passing. :/ If so, they can do an in office biopsy.
  • RTMommyRTMommy
    Hmm. So the biopsy is just to confirm diagnosis? I have abnormal cells and had to have a colpo with biopsies, but it hasn't gone further. I just have to have paps more frequently. If she can do the biopsies while you're already under some kind of anesthesia, I'd do it with the D&C. The ones I got weren't very pleasant while I was awake and could feel everything...the cervix is numb with no nerve endings, my ass. So sorry you're getting this news, but hopefully this means that it's been found super early and you'll be able to treat aggressively. Hugs, honey.
  • captivatedcaptivated
    @rtmommy, she said that if it was just an abnormal pap, no biggie. But that the cells on my cervix weren't abnormal, my endometrial cells were. Said the official diagnosis is a biopsy, but that the three tests she did were all indicative of it which worries her. She said that she had uterine cancer which is why my history and symptoms jumped out at her. Idk. She said the treatment is usually a hysterectomy and radiation if the cells have spread, but usually just a hysterectomy. I'm like, "JUST a hysterectomy?". So I'm hoping if it is, it's caught early enough to just undergo hormone therapy? I don't know anyone that's had uterine cancer, other than my mother and I've only met her once. Maybe this pregnancy and failed D&C did have a reason, considering I wouldn't have seen an OB for a long time if it hadn't been for that.
  • RTMommyRTMommy
    Well, if it will save your life, then I'd opt for the hysterectomy as well. You're young, and that is awful to have to do, but you have two beautiful children to show for it all, so not all bad, right? :) And there may be a chance you can keep your ovaries, so hormonally, you wouldn't change.
  • captivatedcaptivated
    @rtmommy, thank you for that. I assumed a hysterectomy meant mandatory hormones forever. Thank god. IF it comes to that.
  • SalasMommySalasMommy
    Prayers your way!
  • JoshnEviesmumJoshnEviesmum
    my sister had a hysterectomy and still has one ovary. Shes not on any hormones.
  • captivatedcaptivated
    @joshneviesmum, that's really reassuring. I am still holding out that it could have been wrong. The Navy told me once that I had a primary spinal tumor that is 99% chance malignant....and that even if it was benign, I'd still have to have surgical removal. I ended up not even having a tumor. Smh.
  • MijitaMijita
    edited April 2012
    It's easy to let our thoughts jump the gun. Take it one day at a time and count your blessings!

    I told you everything has its reason. Everything will be fine!

    >:D< hugs
  • captivatedcaptivated
    @mijita, it's just so hard not to panic when you hear the word cancer. Our brains have associated cancer with death, and it's scary as hell. I'm sure everything will be fine. Doctors are human and make mistakes too.
  • JoshnEviesmumJoshnEviesmum
    Hon, they get things wrong ALL the time. 8 years ago my mother was told she had an untreatable tumor and only had months to live. Guess what, shes still here, Still battling on, and so far has fought off three different tumors in three totally different parts of her body with the help of radiotherapy. If a 62 year old Obese, Unfit, ex alcoholic and serious drug user with a myriad of other health ailments and a 40 a day smoking habit can kick it, then there has to be hope. Its a god awful disease but Cancer is not a death sentence any more, and judging by what I read, I truly believe you're tough enough to be up for this fight, if it even IS what they fear it MIGHT be. Hugs, Love.
  • MijitaMijita
    edited April 2012
    Yes, unfortunately we have associated cancer with death. We are very fortunate that medical technology has evolved into what it has and many lives are now saved. You are young and it's better to catch it before metastasis occurs, which I'm sure this scare is just that, a scare. You'll be in my thoughts.

    I demand positive thinking!! That's an order!
  • RTMommyRTMommy
    Just try to keep a rational head until you have everything 100% confirmed. Cancer is a scary possibility, but until you know for sure, the stress isn't going to do anything but make you feel worse. You're a smart girl, and you know what needs to happen regardless of the diagnosis. Everything WILL be okay. :) Hugs!

    P.S. My mom had to have a hysterectomy at age 41 and she was able to keep an ovary as well, so she doesn't have to take hormones or anything. She feels the same, and is so excited to never have a period again. lol
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  • KshayeKshaye
    Praying for u girl. Hope every thing turns out Ok?? U have been thru enough. Stay strong. And keep positive
  • captivatedcaptivated
    Thanks ladies. I think this miscarriage is finally finishing/starting. The cramping is getting progressively more intense. Been in bed since finishing class today utterly exhausted and hurting. There was some pinkish blood at first, but now it's like brown spotting again. I wish I would just bleed and get it over with soon.
  • jnlelrodjnlelrod
    prayers :X
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