PKU Test

Carsons_mommy

Has anyones newborns pku test came back with elevated results? My sons did and we got him retested and his results were even higher this time. It would be nice to talk to another mom that knows what im going threw right now

Granny2B

There are a number of reasons test can come back high including baby weighing less than 5 lbs, baby not eating well or not keeping food down well, or baby on antibiotics. How much does baby weigh? How old was baby when tests were done?

Granny2B

www.pkunews.org has good info including support and research info. Hopefully next test will be fine! It is rare, with only about 1 in 10,000 Caucasian babies in US, less in African American, Asian, Hispanic.

Carsons_mommy

@Granny2B my son weighed 7 lbs 8.9 oz and at his 2 week checkup he weighed 8 lbs 6 oz. He is eating fine and rarely ever spits up and he is not on antibiotics. They did the first test sometime in the hospital and then retested him when he was almost 2 weeks old. Both test were high but the 2nd test was even higher

E_N_J

Mine came back tested for cf on te first test we still waiting on the 2 test results

smcox

What is the pku test?

Steph_Due_101611

@Smcox its a test that checks for rare genetic disorders

Carsons_mommy

Pku is when your body can not produce a certain enzyme your body needs and if you have pku and do not get started on the medical formula immediately, then it can cause mental retardation and seizures and stuff

Carsons_mommy

@smcox

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Carsons_mommy

There's no history of it that we know of. They did get him started on the formula after his 2nd test came back high. He will also be on a regular formula too and they are having me test his blood twice a week and mail them the sample until we get his pku levels to where they need to be. He will also have to eat like a vegetarian when he gets older

Carsons_mommy

@HomeBirthAdvocate sorry i keep forgetting to tag everyone lol