Mom n baby have broken hearts....baby dx with tetralogy of fallot

gettinnervousgettinnervous
edited March 2011 in Health
I am 23 weeks pregnant, and on my last ultrasound, they diagnosed my boy with tetralogy of fallot, or a heart defect. I am heartbroken as well. He will need open heart surgery after birth to repair it. I don't know how severe it is yet, go to see cardiologist in 2 weeks. So sad I can't describe it.

Comments

  • Kcantu2Kcantu2
    I hope it all comes out ok. Im sorry you and your sweet baby are going through this
  • momofsevenmomofseven
    I am praying for you'll as well.
  • jodi102011jodi102011
    I am praying for you also!
  • CeliaAgnesCeliaAgnes
    How did they diagnose it? Which symptom did they see? Stay positive, for your baby and your sanity, were all filing away prayers for you.
  • gettinnervousgettinnervous
    Diagnosed by ultrasound. Pulmonary artery narrowing, aorta override, vent/septal defect. I had such a rough start to this pregnancy, and had just found a smidge of peace. I'm really not sure I can do this by myself. Dad makes me crazy....and he lives 2 1/2 hours away. Not even finding peace in prayer. Am so tired of being sad. Ive never been so perpetually sad in my life. And I don't see an end to it. I don't want this little guy to have to endure surgeries and all the things that go with it. It all hurts so much!
  • fingerscrossedfingerscrossed
    I am sorry to hear about your son, but I am very glad the doctors caught the heart defect early. My little sister was unknowingly born with a major heart defect, and we almost lost her. If my mom had not been positive something was wrong, she would have died. The surgeries will be hard on both of you, I won't lie. However, you will be able to pull through, and your strength will help bring him through fighting. I will be keeping all of you in my thoughts.
  • mommy2be20mommy2be20
    Prayers going your way, hope everything work out!
  • preggointxpreggointx
    Prayers r with u
  • gettinnervousgettinnervous
    Little guy and I appreciate the prayers.
  • lucky7lucky7
    @gettinnervous I have a friend who's daughter had heart surgery.idk wht she had though I think its something with the arteries too not sure though.she lives in tennesse I can ask her if she would talk to u bc she's had alot of experience and mayb u can benefit from her experience.lmk.im very sorry this is happening.I will keep u and ur son in my prayers.
  • kenziesmom216kenziesmom216
    meh nd mah dauqhter wil keep yuh in r thouqhts nd prayers .
  • [Deleted User][Deleted User]
    You and your little guy are in my thoughts and prayers!
  • TechGirlPaTechGirlPa
    @gettinnervous. Wow hon I'm really Sorry your little boy and yourself are in this situation. I would think its a good thing that they've discovered it now rather than later and this way you know he will get the treatment he needs immediately. I'm hoping and praying for you.
  • bigmamakbigmamak
    I am very sorry but try to keep calm as best as possible. Babies are stronger and more resilient than we give them credit for. Hope everything turns out ok for ur lil angel
  • gettinnervousgettinnervous
    I was really scared to be raising him on my own when I thought he was healthy. Now I'm beyond words. But thanks for all your encouragement. Maybe later I'll be happy they found it now, but it just brings more sadness to an already sad situation. And believe me, I understand it could be much worse. Not really finding consolation in that.
  • ashleywiini16ashleywiini16
    I am sorry to hear your story:( I can almost relate, I was born with asd (atrial septal defect, or something like that). They didn't find it though until I was a year old. Basically I had a hole in my heart at birth that continued to get bigger & bigger as I grew. At age 7 I had to have open heart surgery. I can't imagine what that did to my mom:( and now that I am pregnant they have me high risk because of my heart and I have been to a LOT of extra appointments & seen heart doctors and they even already did an echo cardiogram on my lil mans heart:( basically all they could tell me is that he has a hole now, because all babies do while in the whomb. Its how mommy & baby share blood I guess. They said he could inherit my defect... or he could not. So im just praying he has a strong normal healthy heart! Anyway, I kind of know how you feel with all the worry & stress & sadness. I can't imagine knowing for sure already that my baby was going to have to have open heart surgery:( I still have hope. But when I pray for my lil man, I will be praying for you & yours too. Best of luck. Don't forget miracles do happen, he might just be your lil miracle man. Try & keep faith:)
  • EarthMamaEarthMama
    My mother takes in medically fragile children to foster and recently adopted one of them that has TOF. If you'd like, you can reach out to her....she could be a great support system for you and know's a lot of support groups and has tons of information on the subject.....
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